Colonoscopy - Stretchy Bowel - Possibly Due To Eds

[joko]

i had a colonoscopy & afterwards he mentioned i have a 'stretchy bowel' - & added that its to do with EDS.
i wasnt sure if he was saying it is definitely a thing with EDS, or that he noticed it, & thought i may be caused by EDS. I didnt ask as i was sedated.

i have long suspected i have EDS but it hasnt been confirmed, im still waiting to see specialists etc.
this is yet another thing to add to the long list of things that are links to EDS that i have

however, what does stretchy bowel 'actually' mean? besides the obvious, i mean what happens to it, does it cause issues, what does it look like etc etc?

i cant find anything at all online - is there another name for this?
as when i search, it just brings up loads of stuff about stringy bowel movements!

my bowel was totally fine otherwise, so its not a problem (is it?)

im more just curious about it

any ideas?

thanks :)

[1ozzy]

From what I've gathered "stretchy bowel" means the walls of your bowel are getting thinner and losing "muscle tone".
Hence less able to perform their task.
It is most probably due to EDS.
I could be wrong, wait and see if Sqad has a diagnosis that doesn't include Ibuprofen;-/

[FatticusInch]

Plenty to digest here(no pun intended).

https://ehlers-danlos.com/2014-physicians-conference/Collins.pdf

[FatticusInch]

And here.

https://www.ehlers-danlos.org/information/gastrointestinal-problems-in-hypermobile-ehlers-danlos-syndrome-and-hypermobility-spectrum-disorders/

[Sqad]

Out of my depth I am afraid.

You have not been diagnosed as having EDS so we are in the dark right from the start.

Stretchy bowel? never heard of it.........only a problem with young children which clearly doesn't apply to you.

You have 2 links to go at, but meanwhile I will give it further thought.

To be honest, it doesn't feel a "big deal" but wait until you see your Gastroenterologist for mor concrete answers.

[MissTerious]

Definitely can be a symptom of EDS/HMS. I know from experience and having a diagnosis from hospital Rheumatology consultant who specialises in soft tissue issues.

There are about 13 different types of EDS/HMS

[MissTerious]

And also bladder and womb can be affected. Faulty collagen can affect us inside and out. I've done a lot of research. It took me years to get a correct professional diagnosis but they know a lot more about it now and are treating it much more seriously.

[Peter Pedant]

yeah it means when it comes out at night
you can skip around the house with it

sorry

[Sqad]

2 further points:

EDS hasn't been diagnosed in your case and the posts of MisTerious indicates that he/she knows what she is talking about.

[MissTerious]

Thanks Squad. My advice to Joko is to get a professional diagnosis and also register with the group below who will give advice and give information. They also send out three monthly magazines and have an online Facebook group.

https://www.hypermobility.org/

[MissTerious]

https://www.hypermobility.org/bowel-issues

[joko]

thanks all

i havent officially been diagnosed, but ive had an 'unofficial confirmation' from a musculoskeletal specialist, he believes i do have it, but that wasnt the reason i was seeing him, & i was already on the waiting lists to see a rheum.
im still waiting for my appt for the rheum

ive had hypermobility all my life, so i think its hEDS.

i think he only mentioned it because i'd mentioned that i was under investigations for EDS, with confirmed HM, & he noticed the stretchiness.

he hasnt said its a problem or anything, i got the impression he was just telling me, rather than it being a formal diagnosis etc.
he didnt note it on my diagnosis printout, it was more casually mentioned.

ive suspected i have EDS for a long time, many many years, so ive joined lots of groups etc
thanks for all the info and links, i'll take a look.