FAO Jenna1978

[SMP]

Hi Jenna, interesting article in the health section of the Daily Mail ( today I think, I looked at it online) about Sjogren's Syndrome.
How is your vision now?

Sara

[Eve]

Hi, ahh thanks for that, found it and very interesting.

More indepth update on my last question if you want a look. Vision been up and down. I had blurry vision every evening last week which was really crap. They felt quite swollen over the eyes as well and it's uncomfortable to look up and the rhumatologist I saw on Monday asked me if I had a sinus infection (nope) as I looked all puffy. Been waking up with puffy under eyes too a lot. Just got eye apt through today for just over a month's time so could be blurry on and off for a while! Hoping it will just go away.

They have felt a bit more comfortable today which is good, had a steroid injection at rhumo so wondering if it has some inflammatory thing to it which may have been helped by the steroids. Even if coincidence though it's nice to be able to see better again :)

How are things with you?

[SMP]

Seem to be having a flare up at the moment. Waking up several times in the night with mouth completely dry, awful feeling. Throat rotten too. Had to do a long drive the other day so joints hurt next day. Having lip biopsy a week on Friday. More worrying, my 23 year old daughter showing signs of Sjogren's too. She has been diagnosed with dry eyes, her mouth is always dry and has had a lot of tooth decay. The exhaustion and joint pain are really dragging her down. She is moving back home next month so will get her to GP then. Take care.
Sara
Would be great if you could PM on this site.

[Eve]

Aww no :( I'm so grateful for the steroids, was feeling seriously down and so urgh with everything. My rhumo nurse was fantastic the other day though and work have been very good, very thankful for that.

I know, pms would be good! Are you on FB? Could find a way of finding each other if so?