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Update For Sqad
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Saw ENT, went to a different hospital as much less waiting time.
She has doubled Betahistines to 2 3x a day with a view to trebling them and back on Stemetil (very glad about that due to how often I'm off balance and it has settled attacks down).
Still on Cinnarazine but to wean off that in the longer term.
Had a grommet put in my worse ear to see if it helps stop the popping and clicking and pressure. Did it then and there though three lots of local until my ear was numb enough. I did feel like a release, like something had opened up in my ear. Feels a bit funny still but is that from all the local and my ear just getting used to it? Still some pops and clicks but not too bad. My ear does feel different though so hoping that it will help!
Very different from what I thought they were, had a look at a Youtube video to see some being put in after!
Back in 6 months and it's apparently a specialist clinic so that is good. They mentioned the possibility of having steroids injected into my ears to se if that would help too.
Fingers crossed it will make a difference!
She has doubled Betahistines to 2 3x a day with a view to trebling them and back on Stemetil (very glad about that due to how often I'm off balance and it has settled attacks down).
Still on Cinnarazine but to wean off that in the longer term.
Had a grommet put in my worse ear to see if it helps stop the popping and clicking and pressure. Did it then and there though three lots of local until my ear was numb enough. I did feel like a release, like something had opened up in my ear. Feels a bit funny still but is that from all the local and my ear just getting used to it? Still some pops and clicks but not too bad. My ear does feel different though so hoping that it will help!
Very different from what I thought they were, had a look at a Youtube video to see some being put in after!
Back in 6 months and it's apparently a specialist clinic so that is good. They mentioned the possibility of having steroids injected into my ears to se if that would help too.
Fingers crossed it will make a difference!
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It wasn't too bad, more faffy as she kept having to stop and then put more local in and then wait and go back in again, so it took a while, and I'm not sure what she poked a few times but it hurt! Must be easy to do though as it's such a tiny area!
Can't say it was a very pleasant experience but figured if it helped it was worth it. Feeling that kind of release was quite a wow experience too! Clever little things!
Can't say it was a very pleasant experience but figured if it helped it was worth it. Feeling that kind of release was quite a wow experience too! Clever little things!
Believe it or not there is a right way and a wrong way to insert theses tubes.The blood supply to the ear drum radiates from the centre to the periphery of the ear drum like the spokes of a wheel and if one makes the incision between the "spokes" then all is well. However if you place your "cut" which bisects one ore more of the "spokes" then you are in big trouble as the ear canal fills with blood and that is the last that you see of eardrum.
It is always done under an operating microscope.
It is always done under an operating microscope.
Aww, bless you Baths, you just try and cope with what life throws at you I guess.
Sqad, wouldn't want to be trying one of them for the first time on a real person! She had a lamp thing, couldn't really see as head turned away though assume a microscope? Lots of weird things going on in my ear.
Should my hearing in that side still be affected? The pressure seems less but I've had dulled hearing on that side since. Seems more noticeable when eating/drinking and speaking to people, my hearing seems dulled, like a filter over it, and very noticeable today when speaking to people and it seemed like it was noticeable to people with how thru spoke to me.
Not in work today so just people in shops and such. Bumped into someone I know and was really struggling. Put Vaseline on cotton wool in my ears when showering earlier.
Is this normal and will it settle down?
Sqad, wouldn't want to be trying one of them for the first time on a real person! She had a lamp thing, couldn't really see as head turned away though assume a microscope? Lots of weird things going on in my ear.
Should my hearing in that side still be affected? The pressure seems less but I've had dulled hearing on that side since. Seems more noticeable when eating/drinking and speaking to people, my hearing seems dulled, like a filter over it, and very noticeable today when speaking to people and it seemed like it was noticeable to people with how thru spoke to me.
Not in work today so just people in shops and such. Bumped into someone I know and was really struggling. Put Vaseline on cotton wool in my ears when showering earlier.
Is this normal and will it settle down?
Difficult question to answer Eve without knowing the full details.
Some surgeons in an act of desperation in treating Meniere's will insert a S-G tube in the hope of some improvement. In sucha a case the hearing would be unaffected.
if the surgeon thought that as well as having Meniere's,you also had a middle ear problem, then a S-G tube would improve your hearing.
Does that answer your question?
Some surgeons in an act of desperation in treating Meniere's will insert a S-G tube in the hope of some improvement. In sucha a case the hearing would be unaffected.
if the surgeon thought that as well as having Meniere's,you also had a middle ear problem, then a S-G tube would improve your hearing.
Does that answer your question?
The discussion we had was from my asking if anything could be done about the popping/clicking tinnitus/pressure and that was when she suggested it and made it clear it was only to see if it would help that. We had already discussed about the meds changes for the dizziness etc...
Nothing was said about it affecting my hearing in that ear and making it worse. Is this a trade off that will stay the same then?
Just had a rather weird experience blowing my nose! If I close my nose and blow, air comes out of my ear!
Nothing was said about it affecting my hearing in that ear and making it worse. Is this a trade off that will stay the same then?
Just had a rather weird experience blowing my nose! If I close my nose and blow, air comes out of my ear!
Eve as I said before you have been through the flint-mill with all ailments but can i ask I too am on betahistines (don't work) do you believe in the Stemetil as I am going to doctors on Monday and I may ask for those. It says on the betahistanes bottle (same as Stemetil) bloody generic if you ask me.
That's good to know (about the air), very weird (feeling wise)! It won't blow the thing out will it?
Hmm, I think I will have to see how it goes and how much of a problem the dulled hearing causes as opposed to before. Wish they would tell you things these before hand though, could help to make a more informed decision.
Thank you for your advice, I appreciate it.
Hmm, I think I will have to see how it goes and how much of a problem the dulled hearing causes as opposed to before. Wish they would tell you things these before hand though, could help to make a more informed decision.
Thank you for your advice, I appreciate it.
Honestly, I don't know jennyjoan, I've been taking them for over 10 years and don't know what things would have been like without them.
I find the stemetil is good for the dizziness/attack side of things and the awful nausea and sick side. It's staved off a good few attacks for me. I'm quite "lucky" in that I seem to get a bit of a warning, it's quite distinct, before I actually really go on a drop attack, I get a really bad tummy, awful sick feeling and, of course the vertigo starts.
When I was switched to Cinnarizine I found I was still having to use some of the stemetil I had left over.
They are different drugs, mine come in a packet rather than a bottle but that might be dose/amount related and the way they dispense them in the pharmacy.
I find the stemetil is good for the dizziness/attack side of things and the awful nausea and sick side. It's staved off a good few attacks for me. I'm quite "lucky" in that I seem to get a bit of a warning, it's quite distinct, before I actually really go on a drop attack, I get a really bad tummy, awful sick feeling and, of course the vertigo starts.
When I was switched to Cinnarizine I found I was still having to use some of the stemetil I had left over.
They are different drugs, mine come in a packet rather than a bottle but that might be dose/amount related and the way they dispense them in the pharmacy.
I hate the job of trying to get out all my tablets into one of those weekly pill box things, for morning and evening doses and then I have the portable little ones for during the day. It's part of a larger week of multiple doses one but you can take out a small strip of boxes for one day at a time with four separate compartments, so can put four different doses of meds for during the day, for painkiller/anti inflammatory doses, bile acid meds and other meds for Meniere's/Sjogrens/IBS. I can then only carry more as and when ones with me otherwise.
Saves doing it multiple times every day but a pain for my poor fingers with the RA and wrecks my nails. The tiny ones are especially faffy like codeine.
You can get them from the chemist already in blister packs for doses but the doses of all my meds don't all match up to make it feasible for me, which is a shame. Might be worth asking if it would work for you though.
Saves doing it multiple times every day but a pain for my poor fingers with the RA and wrecks my nails. The tiny ones are especially faffy like codeine.
You can get them from the chemist already in blister packs for doses but the doses of all my meds don't all match up to make it feasible for me, which is a shame. Might be worth asking if it would work for you though.
Wow, I never knew anything like that existed!!! I am so buying one of those, thank you! Do you have to have different ones for different sizes? Mind you, they aren't dear if I needed a few different ones.
I'm Menieres too. I've been quite "lucky" with my hearing so far, considering my first drop attack was at 17! I am hoping it stays that way for as long as possible! The tinnitus and pressure and such make things more difficult to hear too and annoying it fluctuates so not easy to explain to people how I can hear more or less at different times, and depending on the environment!
I'm Menieres too. I've been quite "lucky" with my hearing so far, considering my first drop attack was at 17! I am hoping it stays that way for as long as possible! The tinnitus and pressure and such make things more difficult to hear too and annoying it fluctuates so not easy to explain to people how I can hear more or less at different times, and depending on the environment!
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