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bednobs | 16:31 Sun 21st Nov 2021 | Body & Soul
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This summer i had Pneumonia and when i was recovering, i suddenly had an inordinate amount of breathlessness that made me have to go to A+E.
I was diagnosed with heart failure and put on water tablets and referred to a cardiologist.
At my first appointment, my Ejection fraction was found to be exceedingly low (i think around 15%) and the cardiologist informed me that around 50% of people diagnosed at this stage don't survive a year, and that i should probably get my affairs in order. SHe also told me i had to have a cardiac MRI and that i would most likely need an implantable cardiac defib to protect against the consequences of arrhythmias. Also started on entresto, beta blockers, sprionolactone and dapaglaflozin. The cardiologist said that it was most likely cause d by my rheumatoid arthritis and/or treatment for RA as i have never had any signs of ischemia or heart troubles before and i'm in my mid-forties
I had the MRI at the beginning of October, and of course started organising my affairs, putting POA in place, moving money around for easy access upon my death for my husband, making a digital will etc.
Yesterday i received a letter following the consultant's review of the MRI, concluding that my EF is now 68% (normal range) with no scarring, and that my consultant was revising her diagnosis to takotsubo cadiomyopathy, which is a heart failure that can occur following severe emotional or physical stress and completely resolve (which it appears to have done), and that i am being discharged!
Bummer is that i have to stay on the medication in case it was due to non-ischemic cardiomyopathy. but i'll take that rather than a 50% chance of dying from it in the next year
I have not stopped smiling since. I know that anything can happen to anyone but it feels like i have got my life back
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That's great news, bednobs, but I am sorry you've had such a very worrying time
What a journey Bednobs on top of all the heartbreak you've suffered - but equally what wonderful news.

I wish you and your lovely family a wonderful and long future.x
That must be like a miracle, Bednobs!
I feel so happy for you and family.
Keep taking the tablets :-)) xx
Lovely news, bednobs & thank you for sharing it with us :-) x
That is brilliant Bednobs, I'd have never known you were so poorly until reading that, all the best to you Xx :-)
I too have H F. One tip bednobs drop the Entresto
they are bad news, and are normally only given to end of care patients and dapagflozin
which are really for diabetics
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thank you in all honesty, i think i'd rather take my consultant's advice. WHat makes you say drop it out of interest?
What fantastic news after such a worrying time! Really happy for you bednobs :)
And thank you for sharing, its lovely to hear some good news!
Excellent news, Bednobs. I hope things continue to go well for you.
The last couple of years has been incredibly awful for you. To then be told that you were on your way out at such a young age must have been difficult for all of you.

I actually smiled when I read that you are now fighting fit and ready to get on with your life. It must be such a relief for all the family ... especially my favourite member Dugee and his cat sibling.
♥♥ ☺☺

That's great news Bednobs!
That is excellent news, bednobs. :o)
You and your family must be so very relieved.

xx
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Well it's only me and husband - didnt tell anyone else!
it definitely gives you a different perspective. Tomorrow is not guaranteed to anyone though.
Bloody hell, Bednobs!!! What a rollercoaster for you and especially with everything else you're having to deal with.

I'm delighted for you. Dave's cooking so I've opened a bottle and we will raise a glass for a long and happy life for you....Gx

Sending you a big hug bednobs, such a wonderful outcome after such a worrying time
//////%At my first appointment, my Ejection fraction was found to be exceedingly low (i think around 15%) ////

I assume that came from a scan?
Then a LVEF of around 15%.

Something wrong here and I would demand an explanation.

Yes good news, BUT I would be bloody annoyed.
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yes following an echo
Thanks bednobs, still not happy and personally would seek a second opinion....private if necessary.
Resurrected & its not Easter. Good luck & fortune to you. Buy a lottery ticket ;)
Blooming heck bednobs, what a time you’ve had over recent years.
I’m so pleased things are looking up for you, (if you knew who I was in my previous incarnation here, you’d know how very fond of you I am) xx

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