Gave Syndrome.

[ferlew]

After 7 plus years of needing transfusions 4 times a year, I finally got a diagnosis on Friday after yet another endoscopy.
Does anyone have experience of this please?
What I really want to know is how long is the procedure to cauterise the blood vessels through an endoscope?
I should have thought to ask whilst I was there, but there was a lot to take in. Five minutes of them just looking was bad enough.
Thank you.

[ferlew]

GAVE syndrome, it nicked my capitals.

 

[jno]

just bumping this up for the night

[ferlew]

Thank you Jno.

[choux]

There are contact details at the bottom of page 2:
Gastric Antral Vascular Ectasia (ruh.nhs.uk)

[Peter Pedant]

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2911825/

article here - vascular ectasia which gives anaemia in old people

[ferlew]

Thank you Choux, that was helpful.
I just hope I can last out the 10 minutes needed.
The endoscopist was very good with me on Friday, and used a paediatric scope, I did remember to ask if the procedure could be done with the smaller scope, and she said yes.

[ferlew]

Thanks PP, interesting. I was told that GAVE was sort of related to the CREST syndrome I had already been diagnosed with.