ChatterBank0 min ago
Osteopenia
After having a dexa scan yesterday, it seems I now have osteopenia rather than full blown osteoporosis, which is really good news..and very surprising too!
I was diagnosed with osteoporosis about 13 years ago, took alendronic acid for five years along with high dose calcium and vit D. Was taken off aa eight years ago but continued with calcium and vit D.
Ive had to take lots of steroids in the last seven or eight years, which also have an effect on bone density, so was very surprised and hugely pleased that I now won't have to take aa again, just keep on with high dose calcium and vit D, and a healthy lifestyle, well, as healthy as my lifestyle is..maybe it's all the gin I consume which has helped ððļ
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For more on marking an answer as the "Best Answer", please visit our FAQ.I thought that too Anne and apparently my spinal surgeon thought so too!!
He was puzzled.
At the time of the last scan my doctor said that rhe AA must have worked and took me off them!
I have bad and OK days but never good days now. Have been told they cannot operate on my Spine and unfortunately there are no cures for EDS. Thanks for asking x
I will decline if they want me to go back on AA.
It's recommended that ladies have a 'drug holiday' after being on aa for five years. They should have another dexa scan and some ladies are put back on it but also many ladies don't need to go back on it.
AA can cause its own problems eg spotanious femur fractures, jaw bone issues, so if ladies no longer need to take it then that's good.
Somehow I slipped through the net..I should have chased it up...and didn't have a dexa scan earlier, but at least I've had one now with the good news.
Also aa stays in the body for about ten years once it's been stopped, doing its stuff. I'm sure it's more complicated than the simplistic way I'm describing it but that's the general gist. I'm sure anyone interested in it all could search the internet and find out more detail.
Hope this helps, Ann ððĶīð