crohn's disease

[I.Don No]

is there anyone on AB who lives with this and is willing to provide some information?

[dot.hawkes]

One of my ex staff, a girl of 18, had to finish working for me qafter developing the disease 18 months ago, she is still going through the stages of her body adapting but has been very poorly. A lady who wor5ks with me in the same store is 62 and has had the disease for 40 years and has recently undergone another op, and is now feeling better than she has in over 20 years. everyone's case is different apparently.

[DONNA1458]

i know its not a personal view but there is lots of information here.

http://www.nhsdirect.nhs.uk/articles/article.a spx?articleId=115

[filthiestfis]

I know its not as bad as Crohn's disease but I suffer from terrible IBS. Just this morning I had to run run run to work to make it on time as I couldnt hold it in. I just about made it but there have been other times when I have defecated myself. Yeah, too much info I know, but it's the reality of these conditions.
I sympathise with the pain and discomfort that crohn sufferers must go through.

[amonty1144]

I was diagnosed with Crohns in 1999, I lost part of my intestine to it.
After 2 years of severe pain I got pregnant and i went into remission, had a little flare up last year but nowhere near as bad as it was. I'm ok at the minute, I'm lucky that it isn't worse.
I do try and manage my diet though and that helps.

[I.Don No]

thanks for the info....much appreciated

[JB]

My mum has had Crohns for years! She was mis-diagnosed at first (which caused a few problems) but even after she was given the correct treatment, she was continually in alot of pain and very limited as to what she could eat. After about 10 years she had an operation and had a colostomy bag fitted (the operation was reversed a year on.) She now eats like a horse, has gained weight (she was painfully thin) and feels better than she ever has! She still has Crohns, but it is under control now. Incidentally - whilst she was originally traumatised by the thought of having a colostomy bag, once she'd recovered from the op, she felt so healthy that she had to be persuaded to have it removed!

[Skreecheeboy]

I think my Grandma had it ages ago and got something removed but she's fit as a fiddle now apart from her 2 bionic knees and old lady beard.

[jg96]

I was diagnosed with Crohns in 2001 after spending 3 years wondering what was wrong with me. Initially weight loss for no reason and random severe stomach pains and much vomiting and dioreha. Have not had to have an operation but take 8 mesalasine tablets per day. I have what they call flareups a few times a year with the vomiting etc. This leaves me totally washed out for a few days and cannot go to work no wish to eat and feel really sh1t. There is no cure I am told it is scar tissue inside the intestine which can cause a blockage hence the symptoms. Ihave been told it does not matter what I eat but personally seem to have flare ups after fatty foods but love curries and these have never been a problem. I am a 53 year old male by the way. Have you been diagnosed?

[I.Don No]

thanks for all the further info.....very helpful.

it's not me with crohn's but a close family member is just in the process of having to come to terms with the disease

once again, thanks