i was trained for an hour or two on this- far as i know it was once thought as a psychiatric illness-which is untrue- the limbs can move involountarily and quite voilently theres lots of symptoms but most dont suffer from them all, and i think that eventually all motor skills can go and really only the mind is active? there is a charity website u might find info on- i live in scotland tho so im sure its a scottish charity! xxxxx