Hi curvy,
my sister suffered with this. I've sent you a link to the ME assosiation,there might just be a support group in your area or you might be able to chat with others with the same condition x http://www.meassociation.org.uk/
The symptoms of CFS / ME are also found in Clinical Depression, and while the first condision has to be managed, the second can be treated, so it's important to know which is which.
As a general rule, CFS / ME manifests itself in total exhaustion - by which I mean bedbound, muscle pain, inability to think and talk properly, some loss of muscle control, some loss of bladder control, and so on.