Axniety over partners illness

[ChocolatChip]

My husband to be has Idiopathic epilepsy, only diagnosed 6 months ago (a year into our relationship) after 11 months of time-wasting (on the hospitals half). He has a similar kind of epilepsy to "Tonic-Clonic" epilepsy, but without the "Clonic" bit. He just loses coniciousness, he can be out for anytime between 10 seconds to 10 mintues. It took him 13 months to get back to work, and he will not be able to drive until March. He has counseling, but is constantly struggling to cope with the longterm affects of epilepsy. He is very depressed, and is scared of going to work (as a chef) because his last serious seizure was at work, and he believes that it will happen again. I have coped up until this point, I completely adore him, and all I want is for him to feel happy and normal. And if he has another seizure (despite being on meds) I don't know what I'm going to say, he will be inconsolable. I am also frightened that his work colleagues may not be able to cope, as they have only seen him have one seizure, and when he has a seizure, he loses his memory, and becomes very agressive and can harm people if he doesn't go out into another seizure in time. (he has hit me before due to not knowing who I am after a particularly bad seizure). When I am with him I feel fine, and don't feel like I have to worry, as I know how to look after him. But when I am at college 30 miles away, I am petrified, and unable to concentrate on anything other than him, I have this sicky feeling in the pit of my stomach thinking that something might happen, and I won't be there, or he'll have one where he won't be able to remember my number and no one will be able to be there asap. Or he wakes up in hospital and he'll be very frightened because he won't know where he is and try and walk off. I'm just beside myself all the time. Does anyone have any words of advice or well anything. I am upset to see that there are no real support groups in the UK for peeople like me.

[marval]

Hi

I am not an expert on epilepsy, I was diagnosed with it many years ago and put on medication. Later they decided I didn't have it, I still suffer from dizzy spells.

All I can advise you to do is find out as much as yo can about it. I am sure if he was to ask his doctor, they would know of a support group. The best thing you can do is just be there for him, make sure that people where he is know about his condition, and what to do in that situation. You cannot worry all the time, ikt won't help either of you.

Here are a couple of links that might help.

http://www.patient.co...lepsy_Research_UK.htm

http://www.epilepsy.org.uk/

I wish you both well.