CRPS any advice??

[looby1914]

Just come back from seeing my consultant for the leg breaks I did in november etc

He has told me that I have CRPS but gave me no information about it what so ever just that he is going to send me to a Pain clinic and let my physio know..

Can anyone tell me what to expect will it get better in time?? Or is it a lifelong condition etc

[Mamyalynne]

If treatment is started early it can go into remission however there is more than one type and is individual to the patient. Do hope you get some respite soon.
Have no personal experience of treatment though.Wish you well.

[looby1914]

Thankyou mamy

Obviously concerned as im only 25.. and have a 4yr old autistic little boy to look after.. but at least have finally found out the reasons been having problems since the surgery. Can only hope it does go into remission.

[Mamyalynne]

Well I certainly hope it does, you do have a lot on your plate, that I can vouch for as my darling Grandson is autistic, though he is a high achiever but challenging all the same.
Keep us informed of progress please.

[redcrx]

looby, i hope that the pain clinic and right consultants can at least minimise the pain and stop it getting more severe.
My friend has had this diagnosed following 3 years of progressive pain. She has 5 kids and another on way.

[redcrx]

dont know if worth mentioning but she has also been started on mirror therapy http://www.howtocopew...rps-can-mirrors-help/

[looby1914]

Thankyou mamy ~ yes he can be a challenge and isn't the A-typical autistic child everyday is a challenge.

redcrx ~ thanks for that.. i remember having complications that night after surgery the nurses had to call two doctors up as I was screaming the place down.. burning feeling in my leg and electric vault like pains.. Since then had problems in my calf and more burning pains etc amongst other symptons.. I thought i was going out of my head and imagining it all as a&e doctors couldn't find anything wrong.

[looby1914]

Thankyou for that redcrx will havea good read through it x

[redcrx]

my friend was sent for counselling as her GP said the pain was all in her mind. Even the counsellor said it wasnt but GP ignored it all for 3 years :(
She has the burning pains as you described, loss of movement all down one side, lack of circulation to point where hands and feet go black too. Now its finally been diagnosed i think she feels some relief but is terrified of the future and what it may hold now the damage is done.
all the best to you, sounds like its being treated early x