Editor's Blog2 mins ago
A medical update for those interested
32 Answers
I haven't been on here apart from odd dips for ages.
As some people know, I have a brain tumour. I had an operation last November to remove it, but this couldn't be done because it wasn't the sort of tumour they hoped it it would be, and to even try and remove it that way would have done me more damage. On the bright side they did discover that it wasn't cancerous, just slowly growing.
I thought I was due for another operation in January (I assumed a full skull opening job rather than through the nose) but this was a hospital error, and I wasn't. Since then it's been further tests and scans, and at last I am going to get some treatment for it (it has only taken over a year since being discovered).
Unfortunately that treatment is only to stop it growing any larger, so how it is affecting me now is likely to remain (muscle weakness, balance problems, unable to walk far, occasional shakes and sometimes blurry vision) but on the other hand if the treatment works (a drug) I shouldn't get any worse. It won't shrink what is there already, and I don't know if it could be removed by surgery or any other way as yet, but I suppose it's something. In theory it is possible that unless stopped it will just grow and could have left me with permanent worse problems.
Mind you, how I am at the moment could be made worse by another medical condition I have, so maybe once that is sorted, I will actually start to feel a bit better - I've avoided hospitals all my life but in the space of six months I have been in three times. Maybe a fourth time if, as I suspect, something in me needs cutting out, which I am hoping to find out tomorrow.
Treatment for the other starts in a couple of weeks.
As some people know, I have a brain tumour. I had an operation last November to remove it, but this couldn't be done because it wasn't the sort of tumour they hoped it it would be, and to even try and remove it that way would have done me more damage. On the bright side they did discover that it wasn't cancerous, just slowly growing.
I thought I was due for another operation in January (I assumed a full skull opening job rather than through the nose) but this was a hospital error, and I wasn't. Since then it's been further tests and scans, and at last I am going to get some treatment for it (it has only taken over a year since being discovered).
Unfortunately that treatment is only to stop it growing any larger, so how it is affecting me now is likely to remain (muscle weakness, balance problems, unable to walk far, occasional shakes and sometimes blurry vision) but on the other hand if the treatment works (a drug) I shouldn't get any worse. It won't shrink what is there already, and I don't know if it could be removed by surgery or any other way as yet, but I suppose it's something. In theory it is possible that unless stopped it will just grow and could have left me with permanent worse problems.
Mind you, how I am at the moment could be made worse by another medical condition I have, so maybe once that is sorted, I will actually start to feel a bit better - I've avoided hospitals all my life but in the space of six months I have been in three times. Maybe a fourth time if, as I suspect, something in me needs cutting out, which I am hoping to find out tomorrow.
Treatment for the other starts in a couple of weeks.
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