More Issues We Have Had Regarding My Daughter?

[SarahGarza88]

This is a continuation from my last post. Clara is six years old but she is 1’5” tall and 18 pounds because of her dwarfism.

When we go out, this could be to the store, on a trip, etc. At 1'5", Clara quickly gets worn out trying to keep up with us if she is walking, even when we slow down for her. Normally we just put her in a baby carrier,or put her in a kiddie stroller. But she has started to complain about it because she is six years old and wants to be independent, she doesn't want to be carried around or placed in a stroller, so what should we start doing when she gets worn out when she's out with us?

And when she is walking around, especially in public. People aren’t expecting a tiny little toddler sized six year old at times. Is there something she could have/where/hold to be more noticeable, a few time is it she has gotten bumped into out in public because she wasn’t seen.

any ideas on how she can be able to reach the door knobs and open/close them by yourself? The handles on the doors are too high for her, plus Clara isn’t strong enough to open or close them.

If anybody has any ideas that would be awesome. I know Clara wants her independence, and I am having trouble coming up with ideas.

[Bobbisox1]

I’m afraid there’s no quick fix that you can ‘magic’ up for Clara, she is what she is and sure she’s a delightful little 6 year old girl , door nobs etc would have to be reached by a step device that she could bring out herself, getting around outside then you should be patient with her and not expect her to ‘keep up’ with you, I can understand her wanting her independence, let her experiment with stuff that’s suitable to her needs

[barry1010]

I think a stand up trolley that Clara could stand up on whilst being pushed might be ideal but I can't find anything like that. Not a wheelchair/pushchair but a funky fun thing that folds up when not being used.

I have seen children with balloons attached to their wrists so they can be easily spotted. Or a flashing headband - huge choice of fun items a lot of young girls would love to wear.

As for the doors, a carpenter can easily lower the handles and fit easy openers. (It might be as simple as turning the doors upside down and putting new openings in the jambs). Clara will always need the door handles to be lower so it will be well worth doing.

[calmck]

How about a trike that can also be pushed

[barry1010]

Excellent suggestion, calmk. I like this one but there are loads on the market Amazon.co.uk User Recommendation

[SarahGarza88]

I was not able to put my full question in this post, so I created another one listing some additional issues we have been having. Can y’all please see if y’all have any advice on this post? I tried to put the link below:

https://www.theanswerbank.co.uk/Family/Question1839918.html

[pastafreak]

Im assuming youre in the dtates due to your use of 'y'all'... :-)
Hopefully there are ideas here...

https://www.lpaonline.org/a-guide-to-home-modifications

Is Clara receiving any treatment for her condition...I understand there is hormone therapy.

[pastafreak]

Eek...please forgive my typos...I usually check back.

// I'm assuming you're in the States due to your use of 'y'all' //

[woodchopper]

A mini Segway ??

[barry1010]

Woodchopper, great suggestion but Clara is only 18 inches tall. Also a Segway needs a lot of balancing skills and many people with her condition do struggle with that - I don't know if Clara does. Segways are illegal to ride in public places in the UK and many other countries.

[jourdain2]

How about a bar stool, with a back and rungs she could climb up?

[Barsel]

I think calmck has given you some good advice on here and also on your other thread, but you haven't said if those ideas are useful to you.
I was going to say that those of us who are not in the same position as yourself or know anybody who is, would find it difficult to advise you, but meeting other people who are in the same position as yourself, will probably be of far more help.
Whoever CLaras health worker is should be able to advise you on meeting others whose children have dwarfism and you should be able to pick up lots of tips from them.
Also, as you are probably not in the UK where this site is based, there may be places where you are that we don't know about.
I wish you all the best in your endeavour to help your daughter. x

[lankeela]

What about a scooter - might help her if she gets tired easily and would also give her a bit of a lift up.

[Barsel]

Lankeela, the girl might not have the balance for a scooter.
Calmk suggested a trike which might be more suitable, but only Sarah will know what her daughter is capable of using.

[Barsel]

At only 17" tall, I think that whatever is suggested, would have to be specially made, so perhaps Sarah could look for a company that makes things, specially for children with dwarfism.

[Barsel]

Perhaps something like this.
Amazon.co.uk User Recommendation

[Barsel]

Or this.
https://www.bargainmax.co.uk/little-tikes-4-in-1-deluxe-edition-neon-blue.html?gclid=CjwKCAjw4ZWkBhA4EiwAVJXwqUCHg2hP7EGFCIZYn_v2a4DvH-KhlXlSNzRq-ZhlVCCjibYUPhYNfBoC5kcQAvD_BwE

[Barsel]

Lots to choose from here.
I won't look further in case this isn't what you are looking for Sarah.
https://www.bargainmax.co.uk/search/Trike/qP=dir=ASC&;order=price&page=3

[SarahGarza88]

Barsel, the tricycle is a good idea. We still want Clara to be able to walk with us, so she would only be using what we got when she isn’t walking and is tired.

Would you have any suggestions for helping people being able to spot Clara when she is walking?

She has gotten bumped into and tripped over a few times.

[Barsel]

Barry mentioned this.
//I have seen children with balloons attached to their wrists so they can be easily spotted. Or a flashing headband - huge choice of fun items a lot of young girls would love to wear.//
I can't think of anything at the moment unless she would be willing to carry a flag of some description that she could wave about.

[Barsel]

They have custom-made flags on Amazon where you can choose what to have on it.