Fao Sqad Et Al Bro-In-Law Pulmonary Oedema Update Not Good

[jourdain2]

Hi, just had my sister on the phone. I'm getting really anxious about her as well. She's working herself into the ground and ended up in A&E herself this weekend with a very bad chest infection which stopped just short of pneumonia. It seems that she (like me under different stress conditions) has also developed sudden onset adult asthma.

I am not sure how much worse this can all get.

Bro-in-law spends most of his days in terrible pain and he can't eat. Today he vomited back everything offered, is exhausted and in bed. The nurses are still removing 1/2 a litre of fluid every other day. It is the pain that is so awful. There is no need for pain. It is wearing him down and he will eventually give up, I know. Next hospital appointment (when we hope there will be an answer) is not until 18th June.

Please, any advice? Any at all? Can we insist that a doctor comes to see the situation in its horrible reality?
Highly stressed daughter (single mum, marriage break-up, just sold house needs to move - I'm going over to help her pack) has driven 30 miles to help deal with things over the weekend. We have some practical help easing the garage problem. But people break. We've all worked so hard and contributed all our lives. It's terrible.

[Sqad]

Thanks for the feedback.
it must be very stressful for you and it is all centred around the health of your brother in law.

I question his diagnosis.

Contact your GP and ask to be put in the picture and ask for some support.

[jourdain2]

Thank you Sqad. I'll pass that on.

[Sqad]

Any news on your BIL ?

[jourdain2]

Nothing positive as yet, I'm afraid. I passed on you advice to my sister and she was going to act on it - I don't have the authority of course. I'll let you know as soon as I hear anything. Oh! and my neice had a horse she was schooling slip and fall on her - fortunately a small horse and no bones broken for either. Life doesn't let up.

[Sqad]

LOL.....it can only get better Jourdain.

[jourdain2]

My sister spoke to the GP this morning. No results have been received as yet, but she did get more effective painkillers prescribed for B-in-L. That has got to help. It's all very strange. The nurses are now emptying the bags every day of 1/2 ltr. fluid.

[Sqad]

Thanks again.
All very strange indeed and still, for me, doesn't add up.......certainly not to acute Pulmonary oedema.

[jourdain2]

Just to say that BinL seems to have almost given up. We've more or less sorted out the 'living/work' pressures - but it is still hard.
The development is that the hospital has sent a letter bringing forward his appointment, which will now be in a couple of weeks instead of July.
I can't think there will be any good news - but this being just left in limbo to cope is horrible. He's still in pain - but that's partly his fault because he's being stubborn and insisting that he can manage without the painkillers and of course they have a cumulative effect.

Anyway, that's where we are up to date.

[calmck]

Oh for the days when the NHS was run by Matrons and Sisters with District nurses and convalescent homes in coastal towns. Thinking of you all and hoping things will improve. Take care of yourselves

[anneasquith]

I really wish we would use pain killers when they are prescribed or advised.
I can only assume his quality of life would be improved if he were pain free.

[Sqad]

Thanks for the update which is still confusing me, the diagnosis and why he is having pain.
Much appreciated Jourdain.

[jourdain2]

Thank you all. Your kindness and understanding really helps.