Truble with a genetic condition

[fire]

Hi all im writing to ask if any one in this world has ever herd of Ehlers Danlos Syndrome, A nother name for it is Indian Rubber Man Skin but nune of as are indian, It's extreemly rare a genetic condition 1 in over 700,000 get it i have it, My mum has it & one of my older sis has it, She is a twin & her other half has not got it and my older one dose not eather. A 50-50% chance if you have kids its expected they will have it, There are 10 sort of stage type things if you have it or know of it you will get what im saying. Im wanting to know how you deal with the pain if people have any other tips we could share and other stuff if you could reply soon it would be nice thanks in advance :)

[joko]

one of the main problems with this is that it is not just your outer skin that is stretchy - all your organs can be affected and the walls of your organs may not be as firm and as strong as they should be and can collapse easier.

my ex had it, but he never had any pain, and it never really affected him much

[fire]

joko thanks for that um i know about the skin and stuff like that um do have any clue what type your ex had it would be really nice to know

[joko]

no idea, sorry.

[fire]

To joko never mind im guessing that ur & you have no contact that is oh k i just wish other people would look at my question and answer it are well thanks any way