Amyloidosis

[naomi24]

Incurable, about to begin chemo, but will the patient experience pain and is life expectancy very short? If anyone has any experience of this condition, its effects, and its treatment I would be grateful for any information.

[anneasquith]

Not a long time :-(

[Theland]

A relief it's not you Naomi, but equally hope it is not a family member either. Take care. X

[Peter Pedant]

eek
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3012628/
it looks as tho 50% are dead at 18 m
but .... you do get long term survivors.

say sozza from me to the affected person ....

[Peter Pedant]

//rest assured it isn’t me. If it were I wouldn’t be posting about it. //
I may be unclear
but may I express lofty disapproval of this idea of

I dont mind putting details of Mrs Mopp's smelly ya-yas on the interent for interest and public discussion and dissection
but if it were me - I certainly wouldnt mention any detail like this about myself because I am so private.....but someone else it doesnt matter

it is a crazy and private lot on AB !

[anneasquith]

A ridiculous post pp. Naomi did not indicate who she may have been getting advice/ knowledge about a condition. It's her right not to issues any personal details on AB .

[naomi24]

Poor old Mrs Mopp, eh? My sympathy to her, PP .... and to you. As you say ... crazy.