Tingling Shin??

[Scarlett]

Yesterday I had cramp repeatedly in my feet- at the base of my middle toe (floor side). Both feet took it in turns. Today I have a fluttering sensation down the front of my left shin. Feet still feel like they might cramp any minute. I also have the usual neuropathic tingling in the soles of my feet. Any idea what this could be?

[Sqad]

Is your hypermobility.....EDS?

[Scarlett]

I haven’t had any specific test for EDS but have all the symptoms.

[Sqad]

OK....then your description of your symptoms are concisely described and consistent with a nerve involvement...a small nerve involvement well recognised and described with EDS in particular and also in other hypermobility disorders.
Name..Small Fibre Syndrome......Google it if you will.
Cause....unknown.
Treatment...none.
I hope that i have been of some help.

[NellieMay]

Scarlett, I have been diagnosed with hypermobility syndrome and have lots of EDS symptoms which have now been recognised by my gp, rheumatologist and the hypermobility clinic I attend at the hospital. I haven't a formal diagnosis and only found out in my 60s what my problems were after a lifetime of wrong diagnoses. I have a lot of similar symptoms that you describe. I am now suffering badly too with osteoarthritis and osteoporods but I am probably years older than you.

Sqad, my friend, if you are looking in, thanks. I have never heard of small fibre syndrome - I shall google. Formal diagnosis would mean me travelling a fair distance and there really is nothing they can do.

[Sqad]

Always a pleasure nellie....;-)

[NellieMay]

:-)

[Scarlett]

Thanks Sqad and Nellie, it’s good to know I’m not alone but also frustrating that nothing can be done! Nellie what other symptoms do you have, out of interest?

[NellieMay]

Hi Scarlett From childhood lots of sprains, aches and pains, and extremely flexible and agile, but clumsiness. Bowel problems.
Arthritis set in at a very young age in neck. As an adult diagnosed with ME, fibromyalgia, anxiety and even told by one gp that was a hypochondriac! Weird nerve sensations. Pulsating , flickering muscles. Worries that I had MS. Increasing arthritis everwhere, early onset osteoporosis. Osteopath picked up on my extreme hypermobility when I was 62 (my Beighton score is still high even at 72! He wrote to my GP, who referred me to Rheumatology who agreed that my hypermobility was the culprit and it was more than likely EDS. EDS needs to be diagnosed by an EDS specialist and none anywhere near. Now attend the hypermobility clinic at the hospital. I have a very high pallet and crowded teeth, all signs. I have only this week had two hernia repairs, one incisionsal. Poor scar healing. And other things too numerous to mention. But a permanent feeling of fatigue. We wear out quickly because our muscles have to work twice as hard all our lives, hence osteoarthritis EDS is not as rare as they make it out to be, but knowledge is improving quite quickly. Don't have physio unless they are EDS trained! They have made me worse!! There is a very good hypermobility group on Facebook - Hypermobility UK Support Group.

[NellieMay]

I had a new shoulder last year. It was so worn out they had to reverse the ball and socket to the other way round!