ChatterBank2 mins ago
New Book Out - On Alzheimer's & Dementia At Large
32 Answers
As a long time ABer, I approached the Ed about posting this thread and given that Alzheimer's and other dementia diseases are so prevalent in society today and not just the West, it's likely that many ABers are impacted as suffering from it, as a carer or a relative or close friend of a sufferer.
My book on the subject went live on Kindle last night - it will be joined by iBookstore, B&N(Nook), Kobo, and Lulu and the website probably today. It's titled 'My Mother Has Alzheimer's - Am I Going Mad?' and seeks to look at the case of my mother from a carer's perspective.
At its base, it's informative as to what dementia and its diseases entail and the way they express themselves and then the book is full of tips for carers and their families. It's more than that though as it is a narrative of what my mother has been through (and me) up to the point of professional care in a Home now needed, so it goes from early symptoms to diagnosis and through the major areas of how it manifested itself in her case. It's poignant, some pathos, emotion (close but not too close, apparently) and there's humour - needed as a pressure relief mechanism.....
Sales have begun already - the market is huge - in the UK alone there are 880k sufferers of Alzheimer's, 500k at home and family carers are thought to make up 90% - there's also, frighteningly so, 225k new cases a year, loading into the system and needing advice. I'm not shooting the moon but even a small slice of the market would be rewarding.
Then when you take the States at 5.7 million sufferers and that Alzheimer's is now prevalent in Japan, Taiwan and India at similar percentages of the population, it really is a global disease and support is needed. There's not that much out there that's been written by carers and if I can help them at all, then that will be a really good justification for writing the book.
Lastly, I sent pixie and a couple of others copies as they have been involved in dementia care professionally or as family so as to test its viability. Pixie loves it but I'll let her comment on it. I've also been put forward for a literary award already - from one of the proof-readers who has been bowled over by it.
I would love to hear any comments here or I can send a throw-away e-address in time - the Ed knows where I live too!
The first link is Amazon.co.uk User Recommendation
Yes, I know my name is out there in public, so no comments there please, if it helps folk then my job is done.
Thanks - DTC (N)
My book on the subject went live on Kindle last night - it will be joined by iBookstore, B&N(Nook), Kobo, and Lulu and the website probably today. It's titled 'My Mother Has Alzheimer's - Am I Going Mad?' and seeks to look at the case of my mother from a carer's perspective.
At its base, it's informative as to what dementia and its diseases entail and the way they express themselves and then the book is full of tips for carers and their families. It's more than that though as it is a narrative of what my mother has been through (and me) up to the point of professional care in a Home now needed, so it goes from early symptoms to diagnosis and through the major areas of how it manifested itself in her case. It's poignant, some pathos, emotion (close but not too close, apparently) and there's humour - needed as a pressure relief mechanism.....
Sales have begun already - the market is huge - in the UK alone there are 880k sufferers of Alzheimer's, 500k at home and family carers are thought to make up 90% - there's also, frighteningly so, 225k new cases a year, loading into the system and needing advice. I'm not shooting the moon but even a small slice of the market would be rewarding.
Then when you take the States at 5.7 million sufferers and that Alzheimer's is now prevalent in Japan, Taiwan and India at similar percentages of the population, it really is a global disease and support is needed. There's not that much out there that's been written by carers and if I can help them at all, then that will be a really good justification for writing the book.
Lastly, I sent pixie and a couple of others copies as they have been involved in dementia care professionally or as family so as to test its viability. Pixie loves it but I'll let her comment on it. I've also been put forward for a literary award already - from one of the proof-readers who has been bowled over by it.
I would love to hear any comments here or I can send a throw-away e-address in time - the Ed knows where I live too!
The first link is Amazon.co.uk User Recommendation
Yes, I know my name is out there in public, so no comments there please, if it helps folk then my job is done.
Thanks - DTC (N)
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I echo Pixie..as a carer for FIL over 5 years I identified with all that DT has put down in words sometimes it felt like an uphill struggle trying to get the care and necessary attention from the world..and it was very isolating at times..a whole gambit of emotions from anger..sadness ..self doubt... unless you have walked in a carer's shoes... the practical side of things is also necessary..what steps to take regarding power of attorney..wills ...letting friends and family know the situation..dealing with folk's ignorance of the condition..how to deal with other's and also the ever changing and unpredictable course of the illness... the extreme exhaustion and how to keep a sense of humour at the same time..or the carer will go mad !! a definite and necessary read for anyone who is touched by Alzheimers
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