Im Done

[nailit]

Wouldnt give McMillan a bent washer after how they have humilitated my mum and left her in so much pain.
Even had nurses taking off their PPE to give her a bed bath, What The Funicular?
Denied her pain relief. The GP had to overide them on that one.
The list can go on forever...

Hope I die of anything but cancer if thats the care that I can I can look forward to.

[Cloverjo]

Can you push for a place in a hospice? Try to speak to as many GPs and district nurses as you can.

[nailit]

No one would beleive you untill it happens to them!

[rowanwitch]

Your care visits should be at set times, if you are having trouble with them ask for different set of carers however if carers turn up at an earlier client and there is a problem they have to wait until the appropriate service arrives to take over.
There is a lot of confusion about the role of Macmillan nurses. They normally do not provide hands on care, they may do a one off to teach a technique to a family carer.
So far as the pain relief is concerned you or your sister need to ask them to explain their rationale, I doubt it was about paperwork more likely it was too close to a previous dose, or they felt it was inappropriate prescribing, as I said in the other place they can only advise and the GP was able to over rule the advice.
In terminal care, taking off PPE is sometimes about connection, but if it was just masks they removed it may be was so they could communicate more easily. They should keep gloves on it they were involved in hygienecare .

[margarettom]

The best place to be when you are so ill is a hospice. They treat everyone so well and their pain relief is the best. It would be my choice I know, not trying to manage at home.

[eve1974]

I’m sorry your mum is going thru this. Our experience with Macmillan was very different.

[Pooka1950]

I'm so sorry that you and your Mum are going through this. My late husband had cancer and the nurses on the unit where he was treated had no time for the McMillan nurses. They said they got all the money, all the publicity but were as much use as a chocolate teapot. I had no experience of them myself but nobody should be left in pain like that.

[lady-janine]

Nailit I was so sorry for you your sister and your mother reading this. No one should be in unnecessary pain. I have no experience of Macmillan nurses but really think it sounds best if you can get your mother into a hospice for her final care. Is there anything you can do to expedite this?

[pixie374]

This is awful, nailit. Do you or your sister have POA? Are you able to swap MacMillan for Marie Curie instead? It seems to be the individuals, rather than the company, but if these are your local nurses, it may be worth trying somewhere else.
I could be wrong here ... but having worked with terminal care nurses (from anywhere) they were only allowed to prescribed certain things, and not painkillers (only administer). So I would go straight to GP for medication.
I really hope you can find an alternative soon. How about carers? And a district nurse for any injections?

[Mexican18]

I'm so sorry,Nailit.
When my wife had cancer our Macmillan nurse was an angel. We couldn't have asked for better care.

[jennyjoan]

the neighbour lady (73) has Alzheimers - there are two carers call to her about 3-4 times a day. The lady is living with her daughter son and grandchildren.

You should have got carers initially so you should enquire about the carers.