laberynthitis

[halfmonty]

I have now had this laberynthitis for 8 months and is no better than when it first started which hospitalised me , is there anything that can be done to rid myself of it ?

[sqad617]

Labyrinthits.......what was the diagnosis when you were in hospital ?viral ? cerebrovasculr ? Meniere's Disease, that would help a lot in answering your question.

[Dollie]

Poor you halfmonty. I had it twelve years ago and it put me in hospital for a fortnight. I really didn't recover fully for at least six months and then it was very a very slow recovery - maybe twelve months until fully firing on all cylinders. It also left me with severe weakness in my limbs which did recover eventually. When I finally was back to full health, it has never returned (to date, touch wood) and I have never had to have any medication since. In the past twelve years I have only had one dizzy episode which lasted about three hours and then went completely. I really hope you get sorted halfmonty as it is the most dreadful thing to suffer from. Good luck.
ps my mate suffers similar symptoms on a regular basis but hers was diagnosed as Menieres disease. she is on stemitil tablets (think thats how you spell it) and it enables her to work and have a good quality of life whenver a 'bout' affects her.

[tabytha]

hi my dad recently had it. it was so severe they gave him a brain scan as they thought he may have had a tumour! he had splitting headaches before collapsing. i didnt realise it was contagious but was told later by my gp when i had a mild dose. unfortunately its a case of riding it out luv with the tabs that the doc gives ya. however i was told that if something makes you feel sick or dizzy do it again. i know i thought crap advice... but apparently it retrains ur brain to not get upset about it and it did actually work....shocker lol x

[Eve]

It's horrible isn't it.

I've got menieres though have managed to get it much more under control than it was by adapting myself and getting into a good medication routine (stemetil, betahistine and flixonase).

Have you had any tests done or further investigations? It took a long time for me to get anywhere with mine, my mum as well and GP's don't seem to understand it very well. Even after diagnosis I've had widely different advice from GP's.

It took me ages to get an initial referral and one GP just laughed at me until he saw me in a bad dizzy spell and realised there really was something wrong.

I went through ENT, neurology then a specialist neurologist specialising in ears who was fantastic.

I have adapted a lot naturally, hold onto things when in lifts or on escalators and walk close to walls without thinking now.

I've had to give a lot of stuff up, I used to do a lot of outdoor pursuits and especially things like riding and climbing just wouldn't be a good idea now.

I also avoid loud, crowded places, though partly as I have hearing issues as well. Heels are usually a no no unless I'm on a very good run.

I've got used to being clumsy, just one of those things now really and a running joke now at work with me missing and bumping into things and tripping over my own feet :)

Makes me a bit more antisocial but there are other things I do now like photography. The thought of having to adjust is often worse than the adjusting itself.