Haemochromatosis......

[rabbitygirl]

anyone have personal experience of this please? Do not need links re this disorder just personal experiences regarding effectiveness of the treatment; psychological effects on them and family members; also age on being diagnosed.

Many thanks.

[pinktwink]

Advice and support

British Liver Trust
Tel: [phone]
Website: www.britishlivertrust.org.uk

The Haemochromatosis Society
Tel: [phone]
Website: www.ghsoc.org

Irish Haemochromatosis Association
Website: www.haemochromatosis-ir.com

here are links on support groups who can assisit in advicing on effects. I guess it depends on the level and nature whether genetic or recently acquired. Men are more likely to get it and diagnosis over 40 more likely. Treatment is efective depending on each individual. I guess like other illnesses peole adapt diet and lifestyle. Hope the person is not a fan of green leafy veg and red meat as they will be off the menu

[rabbitygirl]

Hiya pink. Thanks for reply.

2 close relatives just diagnosed and in poor health. 1 most upset as her fave food is steak!

[pinktwink]

there can be a genetic link

[Ice.Maiden]

Hello rabbity. A relative of ours has it. It's been damned unpleasant for him, but he's much better these days, so I don't know whether he'll ever get rid of it altogether. He was 54 when first diagnosed with the trouble, and is now almost 57. I don't know a great deal about it, but know that he had to stop drinking, change his diet and have frequent blood taken from him. The latter seemed to help. x

[rabbitygirl]

Yes, that's the case here. They are brother and sister and both their parents were carriers. We share a father. In case my mother is a carrier I am to have blood tests as well.

[Ice.Maiden]

I think a man's more liable to have this trouble than a woman rabbity, because women manage to get rid of the excess iron each month, but maybe they can be carriers?

[rabbitygirl]

Hiya icey. My relatives are just above that age. A horrible condition and the news has been quite shocking for my relatives. 1 starts having blood taken this week.....

at least they now know, after some time of suffering, what they are dealing with.

It was once thought rare but apparently 1% of marriages will be between carriers.