ChatterBank0 min ago
Von Hippel Lindau Syndrome - help please
5 Answers
My Father died of a heart attack at 53 (he had 2 heart attacks), his father died at 40 - after 4 heart attacks. My Aunt (my father's sister) has just been diagnosed with Von Hippel Lindau sydrome, and has been receiving chemo for cancer. This is a hereditary disease. I am waiting to be seen my genetics specialist, but I am worried... I also have a baby daughter.... Could anyone please tell me if the heart attacks could have been caused by this syndrome and my father and grandfather went undiagnosed. Also, if I am found to be positive, what it the prognosis for me, and, God fobid, my daughter, if she is also a carrier....
Answers
Best Answer
No best answer has yet been selected by tequilamock. Once a best answer has been selected, it will be shown here.
For more on marking an answer as the "Best Answer", please visit our FAQ.This site:~
http://www.patient.co.uk/showdoc/40001296/
is very informative,if a little technical.
This page at Wikipedia is shorter on information,but easier to read/understand:~
http://en.wikipedia.org/wiki/Von_Hippel-Lindau _disease
and finally,this site is in the US but is aimed at families with
VHLS:~
http://www.vhl.org/
I hope some (or all) of these may prove helpful,it must be worrying for you.
http://www.patient.co.uk/showdoc/40001296/
is very informative,if a little technical.
This page at Wikipedia is shorter on information,but easier to read/understand:~
http://en.wikipedia.org/wiki/Von_Hippel-Lindau _disease
and finally,this site is in the US but is aimed at families with
VHLS:~
http://www.vhl.org/
I hope some (or all) of these may prove helpful,it must be worrying for you.
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