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It's still in the imvestigation stage, but before I continue, I was only drawing similarities to the ataxic and fatigue side of things - sounds like you are far worse than I am. That said, as you will know, the simplest things that you take for granted just get harder and harder and it really gets to you.
My situation is I thought it was feet problems making me feel tired and lose balance, so I went to a chiropodist who suspected I was ataxic. I went to the doctor who referred me to a neurologist, had an MRI scan, and hey presto I have a growth in my head, and he he now referred me to a neuro surgeon. The plus side is that it is a few weeks away before I see him, and has already been a month or so since I last saw someone, so into that I am reading that it is not immediately life threatenening. But until I see the neuro surgeon, I'm still none the wiser as to what is wrong or how serious it really is. All I do know is that there are limits to certain activities, and that includes actually getting to a job!