Jake, I am sorry to hear your news. The "good" news in this, if any, is that the science has come on in leaps and bounds and there is now some hope for recovery, whereas ten years ago it was just about a guaranteed death sentence.
It sounds like you are keeping everything as pragmatic as possible and that is the way to go at this time.
It's not easy though and I am sure all AB thoughts are with you.
You have also reminded me that my next colonoscopy is due, the old man having passed away at 58 of that. You are right, Jake - if it's in the family history, get it checked out, particularly as you enter your 50s.