Medical Records

[ukanonymous]

http://www.telegraph.co.uk/health/healthnews/10646151/Patients-should-be-warned-before-NHS-shares-medical-records-doctors-say.html

How are we supposed to opt out?

[emmie]

from the link
Medical staff in GP surgeries, hospitals, A&E and out-of-hours centres will not use, or be able to use, this database. However, the uploaded data is likely to be made available to organisations outside of the NHS, such as
universities and commercial organisations

[solvitquick]

THE LEAFLET.
I received a leaflet about 2-3 weeks ago. It claims your details will be passed on anonymously, I presume for epidemiological studies although this is not spelt out. Anonymously! - if you swallow that as the complete solution you'll believe anything.
There is no form or 'phone number to opt out. It just refers you to your surgery for that part. Don't waste your own or the receptionists time by phoning as I did. She will jst tell you to visit the sugery.
There is a 'phone number but only to tell you about it (in my eyes that means sell you the idea). There is also a web-site but again just an explanatory site - that then gives them your e-mail address I presume. I used neither phone nor web-site - just read it, phoned surgery and dumped it.
You have learnt everything you need to know from this messy idea on this thread than you will from the slim glossy-coloured piece of paper.
So visit your surgery if you are a "no".
Judging from the confusion here at the "launch" stage imagine how efficient the "implementation" wil be.
If this style of approach were used by scam artists the leaflet would have gone straight to the paper recycle. Actually scam artists could have done a much better job.
Oh! They did not even offer a ball-point pen for enquiring :).
SIQ.

[Peter Pedant]

Yes solvit it will make you sik (!) pun intended

you are right - the data is uploaded and THEN anonymised....
and if it anything like Barclays you will get screwed...

[bibblebub]

delayed until the autumn http://www.independent.co.uk/life-style/health-and-families/health-news/victory-for-privacy-as-nhs-database-is-delayed-9137136.html (just in case this hasn't been posted yet)

[boxtops]

SIQ - opt out form posted earlier http://medconfidential.org/wp-content/uploads/2014/01/caredata_trifold.pdf

[ukanonymous]

I called my sergery and they said ok thats it all done you are opted out. good.

[dannyk13]

Just checked with my GP and he says that all entries will be anonymous. This is a separate database from the one started some time ago which allows access from hospitals etc.

[boxtops]

They said on the TV News last night that the project has definitely been put back until September - but there's not harm in getting your opt-out forms to the GPs now, to be ahead of the game.

[LazyGun]

Interesting article on the whole fiasco surrounding the implementation of this system, from Ben Goldacre, for those interested.

http://www.theguardian.com/society/2014/feb/21/nhs-plan-share-medical-data-save-lives?CMP=twt_fd

[DaisyNonna]

I am a person, not a statistic.
I will walk to the bus stop, wait for a bus, have a 10 minute journey, walk to the surgery and hopefully find a form to fill in. I will then reverse the process. Must be an easier way.

[boxtops]

Well, you can fill in the form on the link above, daisy, that'll save you foraging about in the surgery for a form.