Parkinsons

[nannon]

My gradfather has Parkinsons, he is taking the medication for it (i'm afraid i dont know what its called) But the medication is making him ever so poorly and causing him to feel self concious, as he dribbles and his walking has become slighlty wobbly.

He has mentioned to my mum about coming off the medication and she is researching into the side effects of this but i was wondering if anyone had any experience of someone doing this? or any good websites that would give us both and insight into what could happen?

Thanks

[Rosetta]

He needs to go back to his doctor for review of his medication. Does the doctor know tht he is having these side effects?

[Robinia]

I'm sorry your grandfather has Parkinson's, my brother has it & it's a horrible, cruel disease.
He really mustn't stop his medication suddenly. Is he at home & controlling his own medication? It's very common for patients to juggle their tablets to suit their routine but it's not a good idea & can lead to some terrible results.
The symptoms you describe could be the natural progression of Parkinson's & he needs to be very carefully monitored as it can change rapidly & tablets need to be adjusted regularly, depending on the severity.

As Rosetta has said he needs to go back to his GP & be referred to the specialists if necessary. Tell him not to be afraid to go back as often as he needs.

here's a site you might find helpful http://www.parkinsons.org.uk/

[nannon]

Thank you for you answers.
I dont think he is planning to come off them by himself, he will go back to the doctors/
Its just heartbreaking - he is a very strong, proud man and i think he is finding it very difficult. He is turning 80 in a few months and has had such a good and happy life, i know grandmother is also finding it very hard. My mum is very upset - it all came to a head yesterday when he admitted he was dfinding it hard and the medication was making him feel constantly sick and not able to do things he used to enjoy doing, such as walking down to the marshes and mooors.
My mum is a bit to emotional at the moment to read about it to mush so i will have a look at that website when i get home tonight.
i suppose we are just trying to weigh up the benefits of being on medication or coming off them.

He feels the parkinsons has been coming on for years but has only started to feel ill snince he started the medication - he just wants to be able to do things properly again.

[Robinia]

I understand how you all feel nannon. Maybe his meds need tweaking a bit but it's a sad fact that Parkinson's means that some things may never be done properly again & coupled with his age he's going to slow down naturally as well.
My brother was only in his early 50s(he's 64 now) when he started with it & had never been ill in his life, walked for miles etc & was making plans for travel & working less hrs to enjoy life. It's heartbreaking.

[luxury]

Hi nannon,

Have you heard of Low Dose Naltrexone? your grandfather has nothing to lose by looking into this drug.

I take it for another disease and it has been a god send.

http://www.lowdosenaltrexone.org/ldn_and_ai.ht m

There is a book just published by an Irish woman called Mary Anne Bradley Boyle. Her uncle also has Parkinsons and he has improved 10 fold since starting it.

http://www.marybradleybooks.com/

My tremor has slowed down and my energy has improved.

Everything is worth looking into, and his Neuro may well have heard of it.

If not, there are neuros who will write the prescription.

It is not just an m.s drug.

Best of Luck to You and Your Family and your Grand Father.

Luxury xxx

[Robinia]

That's interesting luxury, thank you. I'll look into it for myself as well as for my brother as I have fibromyalgia.

[luxury]

You're very welcome Robinia.

I am very very happy with it. I take 2.5 ml in liquid form and it suits my needs. My fatigue has improved so much on it and my bladder too.

Some people will need more, up to 4.5 ml/mg and some stay at 3 ml/mg.

There is the LDN Research Trust in the UK and Daily Strength is a USA site with a large user base.

http://dailystrength.org/search?q=LDN

http://www.ldnresearchtrust.org/

There is a trial starting with LDN and Parkinsons in the USA (where else?) and Italy and Germany are also trialing it for other diseases.

It costs me �15 per month for the liquid and �15 for 3 month script.

I use E-Med, online hospital and Dicksons Pharmacy in Glasgow for script fill. Boots wanted �100 pm to make it up cheeky so and so's!!!

Good luck in your research and all thr best with your Fibro. I know that's another horrible one. x