ChatterBank25 mins ago
Terminal Bone Cancer
28 Answers
Mum was diagnosed just over a year ago with terminal (bone) cancer.
For the most part of the last year you wouldn't have thought that there was anything wrong with her apart from old age (87 this year) However the last few weeks have been a bit rough. She's now in a lot of pain and struggling to breathe. Cancer now infecting her spine, collar bone, ribs etc.
She refuses to go into hospital (I think that she fears dying alone with no visitors).
McMillan have been in touch but not much use other to enquire about bowel movements...they seem to have an obsession about how much she sh!ts and not about how much pain she is in.
She doesnt want to die in hospital, full stop!
Just dont know what to do to help her.
She could go on for months like this or she could die tonight judgeing by the state she was in today. (coughing and *** herself at the same time)
McMillan have been less than useless (unless it concerned bowl movements).
Hope I die before I get old....
.
For the most part of the last year you wouldn't have thought that there was anything wrong with her apart from old age (87 this year) However the last few weeks have been a bit rough. She's now in a lot of pain and struggling to breathe. Cancer now infecting her spine, collar bone, ribs etc.
She refuses to go into hospital (I think that she fears dying alone with no visitors).
McMillan have been in touch but not much use other to enquire about bowel movements...they seem to have an obsession about how much she sh!ts and not about how much pain she is in.
She doesnt want to die in hospital, full stop!
Just dont know what to do to help her.
She could go on for months like this or she could die tonight judgeing by the state she was in today. (coughing and *** herself at the same time)
McMillan have been less than useless (unless it concerned bowl movements).
Hope I die before I get old....
.
Answers
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//Has the GP not arranged any district nurses,hospital bed etc?//
Mum had careers ect who were *paid* by the half hour but in actuality did 10 minutes work (if that) and then spent 20 mins writing notes.....we sacked them off!
No district nurse in site since. Nothing!
An 86 yr old dying with cancer and NOTHING!
Mum had careers ect who were *paid* by the half hour but in actuality did 10 minutes work (if that) and then spent 20 mins writing notes.....we sacked them off!
No district nurse in site since. Nothing!
An 86 yr old dying with cancer and NOTHING!
That is very poor, 12 years ago I nursed my Husband at home - he died two feet from where I am sitting now.
I had as much or as little help that I needed, eg I could manage to wash him but couldn't physically roll him to change sheets so they did the latter.
I was also advised of the signs to look for when a morphine pump would be needed, that was the actual day I said goodbye.
An end of life plan makes all the difference, sorry you have been let down.
I would try once more though to get something set up now.
I had as much or as little help that I needed, eg I could manage to wash him but couldn't physically roll him to change sheets so they did the latter.
I was also advised of the signs to look for when a morphine pump would be needed, that was the actual day I said goodbye.
An end of life plan makes all the difference, sorry you have been let down.
I would try once more though to get something set up now.
So sorry Nail it, my heart goes out to you. When my husband was bring treated in our local hospital the nurses had no time for McMillan. They said they got all the publicity, all the money and did f*** all. I can only suggest you contact the GP and kick up a stink, sometimes it is the only thing to do
Ive no doubt whatsoever that McMillan do a fantastic job, but when it comes to dying at home care theres a lack, and that need to be addressed!
My mums MacMillan nurses are a complete waste of time and their only concern is whether or not she's had a sh it that day. Never mind the pain that she's in or the fact that she cant walk, lift a finger, is constanty nauseus, has diarrohea, isnt eating, vomiting after drinking, cant keep meds down, etc. As long as shes been to the toilet for a number 2 then everything is fine.
My heads knackered with it all. Just dont get it!
And yes...im p ssed.
Just want my mum to pass in peace now.
End of life health care is a fuckn joke.
My mums MacMillan nurses are a complete waste of time and their only concern is whether or not she's had a sh it that day. Never mind the pain that she's in or the fact that she cant walk, lift a finger, is constanty nauseus, has diarrohea, isnt eating, vomiting after drinking, cant keep meds down, etc. As long as shes been to the toilet for a number 2 then everything is fine.
My heads knackered with it all. Just dont get it!
And yes...im p ssed.
Just want my mum to pass in peace now.
End of life health care is a fuckn joke.
I remember when my Mum's breast cancer went into her bones (like your Mum ) and towards the end, I had to drive to work and be away for 4 days. A couple of times on the journey I nearly turned back because I had the feeling that I wouldn`t see my Mum again if I went to work. It was awful. My sister stayed with my Mum while I was away and when I came back from work I phoned for an ambulance for her. You might find that you need to do that because you will get results rather than whaffle from McMillan etc
