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Scleroderma

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tamborine | 12:00 Fri 21st Aug 2020 | Body & Soul
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Does anyone know anything of the ailment?
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Don't know if this is of use... https://www.sruk.co.uk/scleroderma
12:17 Fri 21st Aug 2020
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I'm still here, iv lost count of the drugs I'm on, there's no sign of getting better, I'm not sure eny moor, mum , when we discussed my will, forget rob and Rick, you have my flat, and the only friend I have worthy of a gift from my estate is niel James. Pls note. Mother I'm not alright, my body don't work, all I'm fit for is laying in bed, I'm tired of it. The core of my body is rotten, every thing that comes out of it is worse than ***, I wish I could find a way, I keep searching, iv let go, and let God x
tamborine, I am SO sorry you feel this way. I know nothing of this condition, but you need to talk to someone face to face. If no close family who can do this, PLEASE consider Chinajan's post xx
Tambo's son has Scleroderma.
Is this a post from you, Tambo, showinhg us what your sone has said?
Or is this Tambo's son using her account?

If it is the latter, please, please talk directly to your Mum and your medical team to see if you can get an urgent Mental Health referral.

I *think* it's tambo's son that suffers with this condition...and she has posted a message from him to her.
This is SO sad to read. Do the doctors offer any help or advice. Is there a support group?
Don't know if this is of use...

https://www.sruk.co.uk/scleroderma
I think it's her son's post as well. God help him.
Oh my, this is so distressing for those involved .
It is distressing aa, this thread has upset me greatly, especially as I didn't know what scleroderma is, so I looked it up. Are you ok tamborine?
This young man has been so poorly for so long, little wonder that desperation sets in.

Please get help for your immediate frame of mind whoever posted this, Mum or Son.
Question Author
Frazer had low potassium that got him down. Docs have inserted IV into wrist to correct his meds & doubled his antibiotics etc. He can walk albeit slow but he is happier. Thanx to all concerned & pasta’s link has been passed to him.
He can walk albeit slow but he is happier.

Wow, this is something that I have never heard of. Great that he is improving ( long may it carry on ), tambo.
I'm glad there is progress, a little and slow, but still progress.

Frazer is in my prayers as ever.

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