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Thank you, Vagus, you're very kind. It's fair to say she does get down from time to time, especially if she hasn't slept well but on the whole she's coping. Still finds lots to laugh about (often me!) and took great joy in watching a red kite flying over our house yesterday.
She is on two different tablets to help with the urgency to urinate and has now started taking amitryptiline for the pain, which does help. She has also been doing special exercises which at least don't aggravate the condition.