Hi sheribee, I'm so sorry to hear about your daughters troubles. Have you tried calling the hospital? My daughter was messed about with cancelled appointments etc. I think I must've spoken to half the staff at our local hosp. pleading her case, and after what felt like an eternity on the phone, we got an appointment the next day. (this was just for a rapid access clinic not a specialist but it was a start) Sometimes you have to make a nuissance of yourself!
Hope it all gets sorted out soon! x