Sorry to hear of your troubles. Hope something helpful come your way soon.
Have you ever thought about alternative treatment? There was/is someone on here who knows a lot about this type of thing. I forgot who they are, hope they show up.
I know someone who suffered from similar health problems are you presently are undergoing. They tried every treatment around and in the end after many test performed, it turned out that they were allergic to many different foods, fruits, drinks etc.
All the best to you.