Film, Media & TV0 min ago
Scared About The Future...
28 Answers
My husband has had an illness for 4 years now and it seems to be getting worse :( He is only 30 and can have a few issues with 'incontinence', not full blown but leakages.
I actually said to him yesterday that being in a wheelchair is the least of his problems. His illness started off affecting his legs but seems to be affecting his arms, causing his arm to shake and it sometimes happens to both. He had to drink his tea through a straw in a cafe recently as he couldn't hold the mug.
In the last week or so, it really seems to be affecting his swallowing. He has almost choked a few times this week on tablets and food. I have such a phobia of choking, it's the one thing I can't deal with. I'm the same if one of the Residents in work choke, I turn white and start shaking.
It looks like, for the time being, that he is going to have to eat a pretty pureed diet. I am absolutely gutted about it (obviously him more so!). I just can't imagine how restricted it will cause his/ and our life to be. We both enjoy our food, it's the one thing he can look forward to and he hasn't even got that at the moment. I am so scared about the future and disappointed how bloody awful life can be for some people.
Sorry for this miserable post but I just don't know what to do :(
I actually said to him yesterday that being in a wheelchair is the least of his problems. His illness started off affecting his legs but seems to be affecting his arms, causing his arm to shake and it sometimes happens to both. He had to drink his tea through a straw in a cafe recently as he couldn't hold the mug.
In the last week or so, it really seems to be affecting his swallowing. He has almost choked a few times this week on tablets and food. I have such a phobia of choking, it's the one thing I can't deal with. I'm the same if one of the Residents in work choke, I turn white and start shaking.
It looks like, for the time being, that he is going to have to eat a pretty pureed diet. I am absolutely gutted about it (obviously him more so!). I just can't imagine how restricted it will cause his/ and our life to be. We both enjoy our food, it's the one thing he can look forward to and he hasn't even got that at the moment. I am so scared about the future and disappointed how bloody awful life can be for some people.
Sorry for this miserable post but I just don't know what to do :(
Answers
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How hard for you MissC but you're doing a great job caring for your little girl and OH. It cant be easy and you dont deserve such a life at your age. I hope and pray there's a silver lining for you soon. Take each day as it comes and remember we're all here for you x
Dont feel guilty about eating as your strength is all important for you to nurse your OH, take care.
Dont feel guilty about eating as your strength is all important for you to nurse your OH, take care.
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