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Ashya King's Father Explains His Side
Posted in the other thread but nobody seems to be reading it.
Answers
Gromit, no one in their right mind takes a sick five year old, a week out of brain surgery, out of hospital and across borders in the back of a car in search of alternative medical treatment. What did they intend to do? ------------
08:53 Sun 31st Aug 2014
Gromit ..
" No British children have undergone PBT treatment anywhere abroad for brain tumours."
The NHS has sent 99 children abroad for this treatment including some brain tumour cases - there are certain types of brain tumours, such as ependymomas for which proton treatment is best.
A fuller list is given here - it's just that medulloblastoma is not yet on that list. This may change when trials are complete.
http://
The one bit of good news is that with appropriate treatment his survival is about 70%- 80% which is average risk, not high risk.
" No British children have undergone PBT treatment anywhere abroad for brain tumours."
The NHS has sent 99 children abroad for this treatment including some brain tumour cases - there are certain types of brain tumours, such as ependymomas for which proton treatment is best.
A fuller list is given here - it's just that medulloblastoma is not yet on that list. This may change when trials are complete.
http://
The one bit of good news is that with appropriate treatment his survival is about 70%- 80% which is average risk, not high risk.
slaney
// Proton beam radiotherapy is currently only available to treat eye conditions on the NHS in the UK but countries throughout Europe use it for a range of cancers. //
Read more: http://
// Proton beam radiotherapy is currently only available to treat eye conditions on the NHS in the UK but countries throughout Europe use it for a range of cancers. //
Read more: http://
// The treatment is currently only available to treat eye conditions on the NHS in the UK, but is already being used by European countries and in the US for a range of cancers in adults and children.
It differs from X-ray methods by focusing proton beams more precisely at cancer cells, with doses aimed directly at the tumour, and spares the healthy tissue and organs behind it.
Speaking in the video, Mr King said: "It zones in on the area, whereby normal radiation passes through his head and comes out the other side and destroys everything in his head.
"We pleaded with them (in Southampton) for proton beam treatment. They looked at me straight in the face and said with his cancer - which is called medulloblastoma - it would have no benefit whatsoever."
Ros Barnes, whose son Alex went to the US after he was unable to get beam therapy in the UK for his brain tumour, said she would do the same thing as Ashya's family.
She told Sky News: "We were told the same thing, that Alex's tumour wasn't suitable for proton therapy by the NHS here in this country.
"The alternative here was radiotherapy, and he was only four years old at the time it would have caused extreme brain damage and probably wouldn't have worked either. So yes, I would have done the same as this family.
"They wanted us to have the operation here and for him to have radiotherapy, but he would have been blind, brain damaged and in a wheelchair, if he survived, and his prognosis was terrible." //
https:/
It differs from X-ray methods by focusing proton beams more precisely at cancer cells, with doses aimed directly at the tumour, and spares the healthy tissue and organs behind it.
Speaking in the video, Mr King said: "It zones in on the area, whereby normal radiation passes through his head and comes out the other side and destroys everything in his head.
"We pleaded with them (in Southampton) for proton beam treatment. They looked at me straight in the face and said with his cancer - which is called medulloblastoma - it would have no benefit whatsoever."
Ros Barnes, whose son Alex went to the US after he was unable to get beam therapy in the UK for his brain tumour, said she would do the same thing as Ashya's family.
She told Sky News: "We were told the same thing, that Alex's tumour wasn't suitable for proton therapy by the NHS here in this country.
"The alternative here was radiotherapy, and he was only four years old at the time it would have caused extreme brain damage and probably wouldn't have worked either. So yes, I would have done the same as this family.
"They wanted us to have the operation here and for him to have radiotherapy, but he would have been blind, brain damaged and in a wheelchair, if he survived, and his prognosis was terrible." //
https:/
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