Did You Know...

[daffy654]

That today is World Autism Awareness Day?

http://www.worldautismawarenessday.org/site/c. egLMI2ODKpF/b.3917065/

[cazzz1975]

It is a pity but Im happy that they are thriving at their school, I dont really have the patience to keep detailling my sons problems to total strangers because they do something strange in a shop (you know when you get the looks)

my sons have enough of their own problems than to worry about social etiquette as well!!

[velvet lady]

very rewarding. he was fabulous. really sweet when he hummed to me whilst i read hello and bella to him

he loved the gentle approach, which was hard for me, being gobby guts

me and my colleague would take him to the cemetry for a walk, cos it was quiet for him, he would skip around the graves loving the fact no-one bothered him, we would walk behind chatting and ignoring him, he loved it.

can u imagine a man is his 30`s humming and slipping around the cemetry?

i miss the whole special needs work, makes me a better person and more understanding. everyone is different and should be treated equally, but the public are scared of people who are different and they dont know wot to do.

i also worked at mencap for 5 years and have hugely fond memories

[garner]

CNN news have been covering all this week [your world today] it's been very interesting and well worth a look it's from 6pm.g.

[josie48]

Its a pity you left velvet, Caring people like yourself are hard to find. My daughter is a carer and one of her charges passed away 2 weeks ago. She had a condition called "Prada-Willie Syndrome." She was the oldest person in the Uk with it at 78. My daughter broke her heart as she had become close to M. The funeral was a happy one though with the staff singing M's favourite songs and drinking pop.

[Lonnie]

Hi josie,
No, we had no trouble taking my daughter out of school, I think they were only too glad to get rid of her,
our problems really started after that, (education wise), as Social Services said that as we took her out, they wouldn't help with her education, so we hird a specialist two days a week, and for the rest, as I was working, my wife did it, and for someone with no training, she did a marvellous job.

But I have some Idea of the problems you had, as a I know a Mother who did the same as you for her daughter in mainstream, she , (the daughter has passed on now), but at the time, she couldn't understand almost anything that was being taught, she had a helper, but it made no difference, both the school and Social services initially refused to move her to a special needs, so she took them to a Tribunal, and won.
A tribunal isn't legally binding, but they agreed to abide by the decision.

Poor Girl, (the mother) had been through hell, but she kept fighting, as you did.

I think you all, the mothers and carers are wonderful.

[josie48]

I know what you mean Cazz, I got fed up trying to explain my sons little quirks to people. they were worse when he was younger but most of them have gone except, he hates noise so he's been given a quiet place at uni through his advocate,she's great/

[josie48]

Does'nt it make you sick you having to hire a specialist teacher Lonnie? Yet they talk about enough care in the community! Im sure there's Dad stoo who care for their kids whatever age. We almost took our sons case to a tribunal but instead we kept him at home for 2 weeks with lots of mailing and phone calls! Result? The LEA finally gave in and gave us the special school we wanted for our boy. As we had photo's of the bruising by the bully plus, a letter from the x ray dept they obviously had no choice but to back down. Im so sorry for the Mum Lonnie.

[josie48]

Thanks for that garner:-))

[Ice.Maiden]

Thanks for highlighting the day daffy.
My youngest son's autistic, but in mainstream school. It was felt that he'd fare better amongst his known friends, and with the school being nearer to us than the alternative.
The support at this school is very good, and we've been told that our son'll be able to sit his next SATS along with everyone else. He's coming along better than expected, and doesn't have to go through the trauma of change when he eventually moves to senior school.

[neo.]

Amazingly I have been thinking about AS for the last week for the first time in about a year since I went to be assessed....(precognition again ?...happens alot with me...anyone want the winning lottery nos for tonite in advance!).

I tend to pace round in the kitchen at work playing the air guitar, humming....people think that is a little strange...but it relaxes me.

[velvet lady]

i loved it, and was a toughy, drained my energy but never got bored, had a really fun lady with downs syndrome who was 4ft 6, and would scream "pi****ss off really loudly and throw a tantrum at tesco. i would walk off and laugh, that stopped her in her tracks
then i became an estate agent